WP7: Outreach

Main aim: To perform outreach activities towards society and stakeholders, teaching modules for applied universities and preparing a new generation of interdisciplinary researchers.

WP leaders: Eric Reits (AUMC), Jurre Hageman (Hanzehogeschool Groningen), Jelka Lustenhouwer (Hogeschool van Amsterdam), Rob Haselberg (Huntington NL)

Objectives: The training goals of CureQ focuses on preparing a new generation of interdisciplinary researchers in the creation, publishing and use of FAIR data and applying these data to improve disease modelling, therapy development and diagnostics. These researchers will become advocates and drivers of multidisciplinary research, spreading best practices through the research communities. It is vital for academia and industry to build expertise to enable reproducible exploitation of the ever-increasing wealth of biological knowledge. In research in neurodegeneration, this is particularly important. It involves the sharing and exchange of data relating to individual patients. The programme fosters interdisciplinary work from the beginning. PhD students are supervised by experts from neuroscience and computational science and learn from each other through their collaboration. They gain first-hand knowledge of the techniques and tools used in their joint project via regular multidisciplinary work discussions. Training across the network is directed by WP7 work package leaders.

Next to training outreach is a crucial output for the consortium, not only to share data but to include patient family members and associations as ambassadors for research and awareness on HD and SCA. CureQ will replace the current ad hoc approach to incorporating the patient-voice in research and training activity efforts for HD and SCA, and will enable communication between the HD and ADCA/SCA communities to clinicians, industry and researchers